British activist and author with progeria (1997–2015)
Hayley Leanne Okines was an English author and activist who was a sufferer of the extremely rare aging disease progeria. She was known for spreading awareness of the condition. Although the life expectancy for those with the condition is 13 years, Okines was part of a drug trial that had seen her surpass doctors' predictions of her projected lifespan. She died on 2 April 2015 at the age of 17, having lived four years beyond doctors' initial predictions.
The six component signals behind the Fame score, and their ranks across the leaderboards.
Similar profiles worth watching