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Hayley Okines
British activist and author with progeria (1997-2015) · United Kingdom · Activists · Died at 17
A limited profile, because this person is under 18.
Hayley Leanne Okines was an English author and activist who was a sufferer of the extremely rare aging disease progeria. She was known for spreading awareness of the condition.
Hayley Okines is read about 92 times a day, in 11 languages.
A typical day, 30 days to 15 October 2026
The middle day of the days counted, so one week of news cannot move it. The line under it is the last 83 days, one point a day.
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Although the life expectancy for those with the condition is 13 years, Okines was part of a drug trial that had seen her surpass doctors' predictions of her projected lifespan. She died on 2 April 2015 at the age of 17, having lived four years beyond doctors' initial predictions.
